African Health Sciences
Makerere University Medical School
Vol. 16, No. 4, 2016, pp. 929-935
Bioline Code: hs16121
Full paper language: English
Document type: Research Article
Document available free of charge
African Health Sciences, Vol. 16, No. 4, 2016, pp. 929-935
© Copyright 2016 - African Health Sciences
Raising a child with Down’s syndrome: perspectives from South African urban care-givers.|
Barr, Megan D.; Govender, Pragashnie & Rencken, Gina
Objectives: This study addresses a gap from a South African urban perspective on the knowledge and emotional responses of
caregivers with children diagnosed with Down’s syndrome (DS). The study is an initial step towards informing health professionals
who adopt a biopsychosocial approach, in an effort to improve interventions for both caregivers and children.
Methods: A simple descriptive survey was utilized with 57 participants who were caregivers of children with DS. Data was analyzed
descriptively using the Statistical Package for Social Scientists (SPSS) (version 21).
Results: The caregivers’ initial reactions when discovering that the child had DS included shock, sadness and anxiety. When
considering the etiology of Down’s syndrome, findings reflected that caregivers understood DS as a medical condition relating to
chromosomal abnormalities rather than attribution of the syndrome to a fault of their own. Despite the immediate reactions, the
caregivers’ initial emotions toward the child rather than the situation were positive and unchanged by the subsequent challenges
in caring for the child. The caregivers indicated feelings of love toward the child notwithstanding the diagnosis.
Conclusion: This study allowed for the subjective experience, perceptions and attitudes of caregivers to be investigated, and
raised further questions into the deeper meanings and experiences of caregivers towards assisting practitioners in understanding
the dynamics surrounding care-giving that may influence holistic interventions.
Down’s syndrome; caregivers; perceptions; emotional responses