Exploration of the understanding and etiology of ADHD in HIV/AIDS as observed by adolescents with HIV/AIDS, caregivers and health workers- using case vignettes|
Mpango, Richard Stephen; Kinyanda, Eugene; Rukundo, Godfrey Zari; Osafo, Joseph & Gadow, Kenneth D
Background: Attention-Deficit / Hyperactivity Disorder (ADHD) is one of the most prevalent behavioural disorder among children
and adolescents with HIV infection (CA-HIV).
Objective: To explore the explanations used by adolescents with HIV/AIDS, caregivers and health workers to understand and explain
ADHD in HIV/AIDS.
Methods: This was a qualitative sub-study nested within a larger research project whose focus was on mental health among HIV
infected children and adolescents in Kampala and Masaka, Uganda (CHAKA study, 2014-2017). Participants were recruited from
five study sites: two in Kampala and three in Masaka. We purposively sampled 10 ADHD adolescent-caregiver dyads equally divided
between the Masaka and Kampala sites, age groups and gender. Semi-structured interviews were carried out within 12 months of
baseline. Ten HIV health workers (two from each study site) participated. The ten health workers were assessed about their knowledge
related to psychiatric disorders (especially ADHD in HIV/AIDS), services available for such clients and gaps in service provision for
CA-HIV with behavioural / emotional disorders. Participants were recruited over one month. Taped interviews were transcribed
and preliminary coding categories generated based on the research questions. Broad categories of related codes were then generated
to derive a coding framework. Thematic analyses were conducted to elicit common themes emerging from the transcripts.
Results: Explanations used by respondents to express their understanding related to ADHD among CA-HIV included; psychosocial
stressors, biomedical manifestations, personal traits and supernaturalism, which affected health seeking behaviour.
Conclusion: In contexts similar to those in Uganda, treatment approaches for ADHD among HIV positive CA-HIV should consider
the explanations provided by CA-HIV, caregivers to CA-HIV and HIV health workers.
ADHD; explanations; children / adolescents with HIV/AIDS (CA-HIV); compliance; Uganda.