African Health Sciences
Makerere University Medical School
Vol. 20, No. 2, 2020, pp. 955-959
Bioline Code: hs20067
Full paper language: English
Document type: Research Article
Document available free of charge
African Health Sciences, Vol. 20, No. 2, 2020, pp. 955-959
© Copyright 2020 - Muzanyi G et al.
Level of education and preferred language of informed consent for clinical research in a multi-lingual community|
Muzanyi, Grace; Sekitoleko, Isaac; Johnson, John L; Lunkuse, Jane; Nalugwa, Gladys; Nassali, Joanita & Mafigiri, David Kaawa
Background: Low education levels and language barriers present challenges in obtaining informed consent for clinical
Objective: To describe and correlate the association between the level of education and the participant’s preferred language
Design: Descriptive-analytical cross-sectional study.
Participants: Adults being consented for participation in tuberculosis(TB) research studies in an East African community
with varying levels of education.
Procedures: We analyzed data on demographic and educational characteristics collected from adults being consented for
participation in TB studies .Only participants who could understand and speak Luganda (the main local language) or English
( the official language of Uganda) were included in this analysis.
Results: A total of 523 participants were consented between April 2015 and December 2017 and included in this analysis;
250 below Senior four (< 11yrs of education), 114 senior four (at 11yrs of education),73 senior five-senior six (12-13yrs of
education) and 86 beyond senior six (> 13yrs of education). We noted that the preference for English rises with the rising
levels of education and peaked at beyond senior six (83%Vs17%,OR=49,95%CI:22.8-106.3,p<0.001).Participants below
senior four preferred Luganda Vs senior four and above(OR=16.9,95%CI:9.9-28.8,p<0.001)
Conclusion: Rising education levels of participants were associated with preference for English language usage during initial consent for clinical research studies.
Level of education; preferred language; informed consent; multi-lingual community.