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Health Policy and Development
Department of Health Sciences of Uganda Martyrs University
ISSN: 1728-6107 EISSN: 2073-0683
Vol. 6, Num. 3, 2008, pp. 95-101
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Health Policy and Development Journal, Vol. 6, No. 3, December, 2008, pp. 95-101
THEME ONE: HIV/AIDS, REPRODUCTIVE HEALTH AND RIGHTS
Evolution of HIV/AIDS Discourse among the Haya on
ten landing sites on the western shores of Lake
Victoria, Tanzania: Need for a shift from a biomedical to
a meaningful life discourse
Adalbertus Kamanzi
Dodoma University P. O. Box 259, Dodoma, Tanzania. E-mail: adalbertus.akamanzi@gmail.com
Code Number: hp08011
Abstract
Kagera is one of the areas considered to be an epicentre of the HIV/AIDS epidemic in Tanzania.
This has been due to linking HIV/AIDS and the cross-border trade between Uganda and Tanzania,
an activity that was due to lack of essential commodities after the Uganda-Tanzania War of
1978-1981. In a survey in the landing sites of Lake Victoria, where one of the elements is to know the
state of HIV/AIDS, it is found out that people are giving up in their struggle against HIV/AIDS, a
situation that leads to the perception of contracting HIV/AIDS being an "occupational hazard". As the
African sexual permissiveness theory has been at the back of the bio-medical discourse and the
eventual behavioural change paradigms in guiding HIV/AIDS interventions, this article proposes change
of discourse by having the meaningful life discourse in HIV/AIDS interventions.
Introduction
In Africa, HIV/AIDS was first observed in the
Kagera Region of Tanzania and the bordering areas of
Rakai District in Uganda. Despite multiple interventions
over the years, the disease spread fast and has
persisted due to a number of reasons, not least of which is
the local perception of the disease. Studies, however,
have shown how the HIV prevalence has drastically
fallen in the years between 1984 and 1999. In the
high prevalence area of Bukoba Urban, it has fallen
from 24.2% to 13.3%; in the medium prevalence of
Muleba, from 10% to 4.3%, and; in the low prevalence
area of Karagwe, from 4.5% to 2.6% (Kwesigabo et
al. 2005). The reasons for the decrease of the
prevalence are linked to changes in sexual behaviours,
norms, values and customs that are of high risk for
HIV transmission. There has been increase in condom
use, abstinence, "zero grazing" (sticking to one
partner), and uptake of HIV testing, while traditional
practices such as polygamy, widow inheritance,
excessive alcohol consumption, and sexual networking
are declining (Lugalla 2004).
This article is about an assessment of the
HIV/AIDS situation in light of the dominant discourse on the disease among the Haya people of Kagera Region.
It is a reflection of the state of the HIV/AIDS
pandemic in ten landing sites on the western shores of
Lake Victoria. It is part of a baseline survey on the
"Public-Private Partnership Pilot project of Eco-Labelling
of Nile Perch at Bukoba", conducted between
February and May 2008 with funding from the GTZ. The
article begins with background information based on
the results of the survey, giving a general overview of
the HIV/AIDS situation in the landing sites. There
follows a presentation of the changing perceptions of
HIV/AIDS among the Haya people, with an aim of
showing that the perception of the disease has changed
over time, given the prevailing socio-cultural
contexts. Analysis of the HIV/AIDS discourse follows with
the aim of understanding the dominant discourse that
has informed and influenced HIV/AIDS-related interventions. The article winds up with a call
for change of discourse based on the Logotherapy discourse, based on the will to find meaning in life.
Methodology
The study was conducted in ten landing sites on
the western shores of Lake Victoria. The data were obtained by administration of 414 questionnaires, 10 Focus Group Discussions (FGDs) and more than
20 in-depth interviews. While the standardised questionnaire was analysed by use of the
Statistical Program for Social Scientists (SPSS) to obtain
the descriptive statistics, content analysis was used
in interpreting the FGDs and interviews. The
findings have been corroborated with those from a
thorough literature review.
The respondents were largely (77%) people
engaged in fishing and its related income-generating
activities. They were mainly (79%) male and young
adults (73%) and only 38% were single. The main
issues raised concern the extent of the prevalence of
HIV/AIDS; the presence of stigmatisation; the
awareness and use of Voluntary Counselling and
Treatment (VCT) services; and the most important actor in
dealing with HIV/AIDS issues.
HIV/AIDS situation in the landing sites
The respondents were asked to estimate the extent
of the prevalence of HIV/AIDS in the area on a scale
of 1 to 10, whereby 1 was the lowest and 10 the
highest. While the majority (44%) of the respondents
perceived the prevalence of HIV/AIDS to be high, 34%
perceived it to be average and 22% perceived it to be low.
In stressing the perception of a high prevalence of
HIV/AIDS, a respondent in a FGD said:
"when you see four people around, know that three
of them are sick" (Resp., FGD 1 Igabiro)
In another landing site, a respondent in a FGD argued:
"If you came with a trailer and asked for AIDS
patients to be transported free of charge to the hospital,
you would fill it up, come back another round and have
some more. You can never finish AIDS patients here"
(Resp., FGD 2, Igabiro)
The respondents were also asked whether there
was a problem of stigmatisation of HIV/AIDS patients
on the landing sites. The majority (93%) of the respondents were of the opinion that there was
no stigmatisation of HIV/AIDS patients in the
landing sites. The explanation for the low level of
stigmatisation is related to the people's view that since many
people are sick, stigmatisation is useless. This can be
seen from this respondent's view:
[As] you see all us of here, nobody knows who is
sick and who is not. We all know that almost all of us
are sick. When the signs of the sickness appear clearly,
we shall disappear and go [back] to our villages.
You normally hear that so and so is no longer here or you
hear that so and so went back home and he died.
Sometimes, you hear that they have come for one of us! So, at
whom can you point a finger? If you did it you would be
like what the Swahili say Nyani haoni kundule (a
monkey does not see its bum) - [meaning that
nobody acknowledges his/her own ugly side] (Resp.1,
Interview Nyabesiga)
The majority (94%) of the respondents said that
they were aware about voluntary counselling and
testing (VCT) services in the area and 71% had used
them. However, these figures show that there are
more people (29%) who are aware but have not made
use of VCT services, compared to those (6%) who
are not aware about them. Of the respondents who
were aware of but have not made use of VCT
services, 54% said they were afraid of knowing their
HIV/AIDS status, 23% did not care whether they are HIV
positive or not, 20% argued that the VCT services are far,
2% said that the HIV/AIDS test in not reliable, and
1% argued that the VCT services are expensive.
HIV/AIDS prevention interventions have declined
in appeal. An observation made by one of the leaders
in a landing site is revealing of this:
There is a new phenomenon in this island: there
are many women who are pregnant and many little
babies. In the past, there used to be a lot of condoms sold
and consumed in the guest houses. Nowadays, we sell
less condoms and I think that this is why we have
many pregnant women. The danger is that there must be a
lot of HIV/AIDS as well. (Resp.1, Interview Makibwa)
As a follow-up to the concern raised above, a
resident who gave birth during the field research
was interviewed and said:
I was brought in this island by my aunt, who used
to own this hotel, which I now own. She is now dead.
I have two children, both girls; they stay in the village.
I am HIV positive. I was told by doctors, after they
took my blood in Bukoba. I used to fear giving birth
because I thought I would give my disease to the baby. But
one day, I remember that I was told that it was possible
to give birth to a baby who is not HIV positive even
when you are positive. As I wanted to give birth, I decided
to stop using condoms so that I could get pregnant.
This is the baby. I did not fear HIV/AIDS because I have
it already. I feared for the baby only.
(Resp.2,
Interview Makibwa)
Due to lack of appropriate equipment and
facilities, fishing on Lake Victoria is a very dangerous
activity. Many lives are lost due to boating accidents.
This continuous risk of death on the waters seems, somewhat, to desensitise the residents from
death. Combined with the presence of killer diseases like
HIV/AIDS, the people feel exposed to danger from all
sides of their lives and resolve not be scared of any
cause. One resident said:
When I am on a boat, I am sitting on a grave. So when
I come back, how do you tell me not to enjoy my
life? Why not? I should sleep with as many women
as possible.
Some tell us to use condoms: the best
way is to go live. Fearing death is not a solution to
any problem.
(Resp.1, FGD Makibwa)
This shows that some residents have despaired
about the disease and no longer care to take any
precautions to protect themselves or their partners. At most,
they are only concerned about their offspring.
Despair seems to be a kind of personal life crisis. The
two responses above typify the current perceptions of
the people on HIV/AIDS, which has had a rather
long continuum of changing perceptions since its recognition in the early 1980s.
The despair expressed by these people is
connected to the economic situation in the landing sites.
People work hard and long hours for little economic
gain, mostly because of the exploitative contracts they
make with the boat owners or money lenders who give
them working capital. For example, one fisherman said:
All the fish I catch must be sold to him. He buys a kilo
at 1,000/- shillings [about 1 USD]. I must buy all
my essential commodities from his shop. They
record everything and I pay after fishing. However, I buy
fuel from his store at 2,000/- per litre. For every trip, I
have to give him fish worth 5,000/- for his home
consumption as "mukubi" [sauce]; and I also have to give him
5,000/- for renting the boat engine. At the end of the month,
he deducts all my debts, and I am entitled to 30% while
he is entitled to 70%. Nothing remains with me, and I am
in perpetual debt to my boss (Resp.3, Interview Igabiro )
Regarding the most important actors involved in
dealing with HIV/AIDS issues at the landing sites, the
majority (49.1%) of the respondents mentioned NGOs
dealing with health activities; followed by medical
personnel (20.9%); radios (17.7%); family members,
relatives and friends (9%), and village leaders (3.2%).
In this section, the paper shows the
HIV/AIDS situation at the landing sites. The perception of
the people is that the prevalence of HIV/AIDS is
high; stigmatisation is low; there is high level of
awareness of VCT services, even though their use is lower,
and; the important actors dealing with HIV/AIDS
are basically NGOs dealing with health issues and individual medical doctors. The next section deals
with the changing perceptions of HIV/AIDS among
the Haya people, lead to the current perception of
HIV/AIDS.
Changing perceptions of HIV/AIDS
Edisi, a local corruption of the word "AIDS", is widely known among the Haya people of Kagera
Region. However, the Kiswahili acronym, UKIMWI,
(Ukosefu wa Kinga Mwilini) is also commonly used side
by side with other names in the Haya language. The different names given to HIV/AIDS among the
Haya people denote the different perceptions that
people have had with HIV/AIDS over time. However, all
the perceptions reflect psychological stress in
the population.
The first people to die of HIV/AIDS were linked
to cross-border trade between Uganda and Tanzania, which reached its peak from 1978 to 1984. At
this time, both Uganda and Tanzania lacked most
essential goods, a situation that had arisen due to the
1978-1979 war between the two countries.
Cross-border smuggling (locally called Magendo) of mainly essential commodities was the order of the day
(Malyamkono and Bagachwa, 1990; Kaijage 1993; Weiss 1993).
One popular commodity, Juliana, a polyester-like
cloth from which shirts and dresses were made
(Rugalema 1999:90), symbolised the Magendo business.
The majority of the earlier patients of HIV/AIDS
were young men and women engaged in cross-border smuggling of Juliana. It was therefore thought that the disease came from across the border and so,
HIV/AIDS was also called Juliana or a "disease or
affliction of Juliana or Magendo traders" (Rugalema 1999:68).
Given the fact that the people who suffered from
HIV/AIDS lost a lot of weight, HIV/AIDS was later
named Silimu, a corruption of the English word "Slim".
This name became more fashionable and replaced Juliana in the mid-1980s mainly because, after the war,
trade liberalisation in both countries rendered smuggling
of Juliana unnecessary and unprofitable since
better clothing material was more available on the
open market. While the name Silimu got widespread
beyond the border areas, the preferred name for
HIV/AIDS in Haya in the mid-to-late 1980's became Ekiuka ("pest"). Ekiuka is an expression of two basic
issues. It ordinarily refers to the weevils and nematodes
which destroy (usually young) banana crops. Kagera
Region is a banana-growing area. Therefore, on one hand
it is an analogy drawn between the infestation of
bananas by pests and infection of the human population by
the HIV virus (Rugalema 1999:68) and, on the other
hand, it is an expression of the medical discourse
explaining HIV/AIDS in terms of viral infection. As
the destructive combination of weevils and nematodes
kills immature banana plants (Walker et al. 1983), so
does HIV/AIDS kill young adults.
Much as UKIMWI, Edisi, Silimu, Ekiuka still co-exist to date, other descriptive expressions have come along, pointing out the known social effects of the
disease e.g. increase in mortality, especially the among
young adults. Such expressions include Lumara
Bantu ("exterminator of humans"), Lwaka Bazaire ("depriver of parents" [of their children]), and Kinaga mw'irungu, ("desolator") (Rugalema 1998:68).
Currently, due to the failure of medical efforts
to eliminate the virus that is responsible for AIDS
and the seeming inevitability of the disease, people
have come to see HIV/AIDS as an "occupational
hazard" (Rugalema 1999:69). They have started
rationalising about the inevitability of contracting HIV/AIDS
with two similar sayings i.e. enfuka egwa
omundimilo (literally, "a hoe only breaks in the garden")
and ekihosho kigwa omukikonya (an ekihosho is a spear-like garden tool used for digging holes and
uprooting plants such as banana stems - the proverb
literally means that such a tool can only break inside the
banana stump). The two proverbs basically mean that
only those who are involved in activities where they
may contract HIV/AIDS will be affected, hence the
sense of the disease being an occupational hazard.
However, from the tone of the proverbs, one reads a sense
of resignation to the presumed inevitable.
This section has presented the different
perceptions of HIV/AIDS among the Haya people over
time, beginning from the early 1980s when HIV/AIDS
was first recognised, linked with the trans-border
trade between Tanzania and Uganda, to the present
day when it has come to be considered as an
occupational hazard. However, ever since HIV/AIDS
was recognised in Africa to the present day, there
have been numerous interventions to alleviate its impact
on the different societies. Such interventions
were informed by a certain discourse, which is
discussed in the following section.
HIV/AIDS discourse in Africa
The slowness of other disciplines in responding
to the initial impact of HIV/AIDS gave room to
medical and behavioural perspectives to become the predominant discourses on AIDS in Africa
(van Eerdewijk 2007:36) and, consequently, on
research on sexuality (Parker 2001). About 22 million
people currently live with HIV/AIDS in sub-Saharan
Africa, which is about 67% of the worldwide 32.9
million people living with the disease (UNAIDS 2008).
Given that medical perspectives dominated the
initial enthusiasm in dealing with HIV/AIDS and its
effects (Packard and Epstein 1991; Parker 1995:260;
Schoepf 1995:41). According to Vance (1999:47),
"AIDS encourages biomedical approaches to
sexuality through the repeated association of sexuality with disease. And this is the basis of the hegemonic
medical discourse, which is, basically,
concerned with symptoms, with
depersonalised 'seropositives'.
Medical discourse has shaped
the cultural agenda of AIDS in which the person with
AIDS, as a full human person, is absent.
To think in terms
of exclusive, fixed categories, of a fixed relationship
between sex and gender, and to advance monocausal
explanations for extremely complex social phenomena, is to be
blind to the flexibility of sexual behaviours and to
the interrelatedness of risk.
The hegemonic
medical paradigm has been deaf to women's voices, and
altogether reductionist (Seidel 1993:176).
With the categorisations of HIV infection in terms
of Patterns (Seidel 1993; Patton 1997), Pattern
One referring to Europe and North America where
most infections occur through drug injection and homosexual contacts, and Pattern Two referring
to Africa where HIV is mainly transmitted through heterosexual sex, there was "invention of
African AIDS" (Patton 1997), and the eventual struggle
to explain the phenomenon.
With the limited knowledge of African cultures
and societies based on colonial literature which
was ethnocentric and evolutionist (Packard and
Epstein 1991; Stillwaggon 2003; Lyons and Lyons
2004), higher levels of sexual promiscuity were put as
an explanation for the African AIDS. Caldwell,
Caldwell and Quiggin (1989), with the "African
permissive sexuality thesis", became an important point
of reference to explain Africa's high HIV rates from
a distinct African sexuality that is characterised by
high rates of partner change and sexual networking.
In brief, their argument is: "there is a distinct
and internally coherent African system embracing sexuality, marriage and much else" (Caldwell et
al 1989:187), whereby Western Europe developed
into a system with "a proper and stable marriage to a
person of the same social class, and its ensuring by
controlling female pre-marital and extra-marital sexuality.
Sexual behaviour, especially the female sexual
behaviour, moved to centre stage in morality and theology"
(Ibid.: 192). All this was geared towards controlling
property. In Africa, the situation was different: instead
of controlling property, it was about control of people,
a system named "wealth in people" (Bledsoe and
Cohen 1993:70-71), whereby fertility and
reproduction become important, with weaker marriage bonds
than lineage links. Since non-marital births or
marriage dissolution are not greatly feared, there is little
need to control sexuality and the sexual act. From
the African permissive sexuality thesis, it is
therefore implied that
Sexual promiscuity, particularly among women, is
the norm in Africa, and that the lack of "control" of
women's sexuality is the key to the AIDS epidemic in that
region (Le Blanc, Meintel and Piché 1991:501).
And Van Eerdewijk (2007:38) argues that
The conclusions of the Caldwells is that the high
degree of permissiveness and little morality on sexuality in
Africa allow for multiple partnership and high rates of
partner change, and that this level of sexual networking makes
it easy for HIV to spread.
This paper would not like to get into a discussion
on the criticisms about this thesis. It suffices to
point out two big criticisms: The first criticism
surrounds issues of interpretation of sources and findings.
The thesis that claims the existence of African
sexual permissiveness cannot be supported by
empirical evidence (Stillwaggon 2003; Van Eerdewijk
2007); much as their selection of literature is not
clear (Ahlberg 1994:223), their choice of studies
seems to be biased towards those indicating lack of
moral value for sexuality (van Eerdewijk 2007:38)
because they ignore the historical context and changes
by referring to studies from 1920 to the 1970s (Le
Blanc et al. 1991: 498-499); they have adapted,
distorted and rejected data that do not support their
hypothesis (Stillwaggon 2003:819-820). Such issues
indicate their zeal to interpret sources and findings in
order to verify their theory, regardless of the
countervailing issues.
The second criticism demands going beyond the
issues of interpretation of sources and findings to
pointing out an issue of the thesis' expression of
profound Eurocentricism and racism (Stillwaggon
2003). According to Arnfred (2004b:67), the thesis
was more a re-vitalisation of these age-old images fed
by sexual anxieties and fears than an introduction
of something new. It is all there: the unbridled black
female sexuality, excessive, threatening and contagious,
carrying a deadly disease.
This is an expression of the Africans as the
"social Other" in a form of a myth of
hyper-sexualised Africans as opposed to idealised European
sexuality (Lyons and Lyons 2004).
Regardless of the criticisms of the
weaknesses identified with the African sexual
permissiveness theory, it has been very influential and has
dominated and still dominates interventions on HIV/AIDS
in Africa. Basically, the theory has resulted into behavioural paradigms to deal with HIV/AIDS. The paradigm has focused on identifying cultural
aspects of sexuality that could contribute to the spread of
HIV/AIDS. Gausset (2001) mentions some of them as polygamy, adultery, premarital sex,
wife-sharing, widow inheritance, circumcision and
scarification rituals, dry sex and witchcraft beliefs. The
problem is that a good number of these practices were
taken out of their contexts, exaggerated, distorted
or invented (Treichler 1992:390) and, in so doing,
lost their meanings, importance and embedment in
cultural, social, economic and political contexts (Van
Eerdewijk 2007:41).
This section has presented the dominant
HIV/AIDS discourse as based on the African sexual permissiveness theory, expressed in the
biomedical- and behavioural-oriented interventions.
Some important conclusions may be drawn from the preceding, in light of the assessment of the
dominant HIV/AIDS discourse among the Haya people of
Kagera Region.
Conclusion
Among the people studied, HIV/AIDS is perceived
to be highly prevalent, stigmatisation is low, there is
a high level of awareness of VCT services and
their use is relatively quite high. HIV/AIDS has
compounded the poor economic situation of the people on
the landing sites and added stress to them, making
them despondent. Current efforts to deal with
HIV/AIDS are still informed by the biomedical discourse
of interventions in treatment and change of behaviour
to avoid more HIV infections. However, this
discourse is deeply linked to the flawed premise of
sexual permissiveness among Africans. It does not go as
far as addressing livelihood issues in totality.
As Munyonyo (2007:1) points out,
people and communities perceive and deal with
HIV/AIDS as one of the many problems and tensions
they experience as affecting their well being rather
than perceiving and dealing with it as their single
most significant problem
This implies that there is need to get an alternative
or complementary discourse in order to address HIV/AIDS within the totality of people's lives. This
paper opposes the idea of counteracting the
biomedical discourse by putting the blame on the
western lifestyles and practices as responsible for
the breakdowns of the social and moral control and consequently for the spread of HIV/AIDS
(Patton 1997) and to throwing away western lifestyles
and practices as an alternative to African ones. As
Gausset (2001:512) points out,
to think that restoring cultural traditions or, on
the contrary, fighting traditions, will solve the problem
of AIDS is
naïve. Both discourses focus on the
wrong targets.
Traditional or western behaviour and
ways of thinking are not what prevents the spread of AIDS.
This paper proposes an alternative discourse i.e.
a meaningful life discourse. In this discourse,
the livelihood aspirations of the people should be a
central focus of an integrated approach that addresses
the vulnerability contexts of the lives of the people.
The livelihood aspirations should be what define
the meaningfulness of people's lives. Each effort to
address the vulnerability context should be construed as
a means to achieve the meaningful life.
Acknowledgments
This paper is written from material collected as
the baseline information for the "Public-Private
Public Partnership Pilot project of Eco-Labelling of Nile
perch at Bukoba", conducted between February and
May 2008, winding up with a workshop in May 2008.
The beneficiaries of the project were to be mainly the
Vicfish fish-processing company, and the fisherfolk
that supply Nile Perch at the landing sites of the
Bukoba side of Lake Victoria. It was funded by GTZ
and implemented by Agro-Eco Uganda. .
The author also extends sincere gratitude to
fellow researchers: Hilde de Beule and Jimmy Pule of
Agro-Eco, Uganda, and all the research assistants
who participated, namely Adelardus Kamukulu, Isack Kamukulu, Pernias Kaindoa, Aziz Kazinja,
Neema Safari, and Irene Ng'wananogu, all from Bukoba.
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